On my head exploding with the bureaucracy and all

The first time I tried to kick it, it was a reaction to my father’s violence. Or so I was led to assume. I mean, what eight year old wouldn’t try to die after being being beaten with a stick far more times than her memory can remember good to negate?

When I was pronounced anorexic around 12, it was simply a cry for attention. The drugs no one knew about, the same.

At 15, I was presumed borderline schizophrenic by a doctor that everyone else presumed a quack, since there’s no such thing.

The first time I got pregnant, the first time I had sex, after careful administration of a birth control pill for nearly three months before hand, three pregnancy tests said I wasn’t. It wasn’t until a pill was prescribed to induce my period and that period went on forever and left me feeling rather hollow inside that I was told that I had been pregnant.

19, sitting in the office of my fiancé’s family doctor, I was prescribed my first antidepressant. A prescription I filled and was nearly immediately told that I didn’t need by nearly everyone close to me.

24. In the midst of (my only) manic break, the psychiatrist told me that I’d stop hearing voices, hallucinating and thinking that men on the street were planning to rape and murder me if I just started eating more and cut back on my caffeine. Different doctors called me schizoeffective and also claimed me to have another made up disease, full-spectrum personality disorder.

At 25, knocked up and suicidal, dreaming of losing a baby that I was convinced never would be, a doctor agreed with what my scrupulous notes had told me, I was cyclothymic, with a twist – obsessive compulsive personality disorder and attention deficit disorder.

The gates opened.

Finally, even though the Ex didn’t agree, even though most everyone didn’t, I had a thing and that thing could be dealt with. It wasn’t just in my head anymore and I wasn’t just doing it to myself. I was no longer helpless to the illusion that maybe something was wrong with me, or maybe I was just too weak a person to be able to make it through life without being a royal fuck up who needed a thing to blame it on.

jet. lag.

After Isobel was born, when PPD had kicked in and so had colic and I was forced to hold her while she screamed sometimes ten hours a day, when again I fantasized about killing myself, I didn’t question if something was wrong with her. In fact, it took the Ex asking the doctor during her one-month checkup to find out she had colic. I’d thought, hey, babies cry. Mine does a lot. I just can’t handle it.

When that went on until she was nearly six months, something clicked into place with me and I started actually worrying about her. When, at 13 months, she showed a level of violence usually attributed to three-year olds with personality issues, I took her to the doctor and was told she had a severe case of the terrible twos. 13 months old. Severe.

When I’d had at least one black eye and more bruises than I can ever count, she started hurting herself intentionally and I demanded she be referred to a pediatrician. I did my research. I knew going into pregnancy that there was a large chance I’d pass on my…fragile state of mind to my children – I’d like to think that’s part of the reason my father told me to abort when I was three months pregnant, not just because he was a twisted fuck – and I read up in the 18 months between her birth and her first (what’s considered in Canada) appointment with a specialist.

I knew the signs and symptoms of early-onset bipolar disorder, ADD, OCD, autism, Aspergers. I also knew that some of the symptoms of those conditions can be attributed to food allergies – typically wheat and dairy. Coupled with her propensity to get sick roughly every three weeks, having had 14 ear infections within a 12 month period, it seemed, on paper, that allergies were the culprit.

Her blood tests came back clean. No allergies.

I was told to bring her back when she was 3 for reassessment for what the doctor figured was bipolar or ADD. I was scared as fuck, having conversations already with the Ex about how I wouldn’t medicate her, how I refused, until it significantly affected her life or until she was old enough to make an informed decision herself.

Mostly, I was scared that there was actually nothing wrong with her and I was just too fucking weak to be a parent. I couldn’t handle it, so I attributed my failings to her and some phantom condition, I thought. I mean, come on, my whole life’d been made up of people telling me that there wasn’t anything actually wrong with me – it was all in my head.

A year went by, but during it, I decided to throw caution to the wind and remove milk from her diet. There’s a heavily rumoured link between dairy and ear infections, see. She’d still have cheese and yogurt and butter, but just drank rice or soy milk instead. She didn’t get one single infection after that.

But her tolerance to dairy products quickly broke down, so that within two months, she couldn’t digest a few spoons of yogurt any more. In the midst of this, her dad and I were non communicata possibila, basically threatening or screaming at each other whenever we had the chance. And I was still documenting every single thing he did wrong, so as to bring back into court the proof that I might need one day for him to not have more rights to her until he changed himself and his life.

I took her to the doctor when the reactions got particularly severe and he was still giving her just a little bit of dairy products. He referred her to a new pediatrician. Said pediatrician spoke dejectedly about false-negatives on allergy tests. Apparently, they’re common in young children especially. Enter the elimination diet.

Wheat and dairy showed a crystal clear reaction – her mood swings would increase and deepen, the bags under her eyes darken, she’d become sleepy and quite frankly, kind of a bitch. We didn’t go back to the doctor, since the culprits’d been identified.

Then she started getting these rashes. I thought it was berries she’d suddenly become allergic to and prayed that it wasn’t corn. Nothing in our environment had changed, so it didn’t occur to me that she might be getting them as a result of something at home. And well, she had the other two big-players for food allergies. So.

In all honestly, I was a little happy that there was an actual physical manifestation. There was no longer any doubt in my mind that I was making the puzzle piece fit into the wrong hole as a means to correct my lack of abilities. This was the Scarlett letter of not-bad-parenting, to me.

After a little while, she stopped getting as many. Even though she had berries and corn. I couldn’t figure it out. I went to BlogHer, leaving her with one of my best friends and her family, with a side-request that should Isobel become spot-laden, my friend make a note of what she’d eaten.

Not one damn spot in the four days I was gone.

the reason I'm losing my mind with worry

By Monday morning, she had 11.

By Monday afternoon, about 19, if you included the 11 from the morning which had almost disappeared. One wrapped nearly all the way around her wrist, others cluttered around her elbows. They aren’t itchy, or painful, they don’t bother her, and actually, she seems to like the hey, look at me phenomenon that plays out when she announces she has a rash.

We went to the clinic. The doctor took one look and said it was an allergic reaction. I said, to what? And he gave me a form to give to the receptionist. Isobel’s getting a scratch test done.

Tuesday, no call back with an appointment time. Another 10 or so spots.

Wednesday, still nothing, and nearly a quarter of her back is affected with whateverthefuckthisshitis.

Thursday morning, I see on one very tiny forearm, one three years old and still too small to fit into two year old clothes, over 19 spots. All different sizes, all just the same, none indicative of what’s bringing them on.

This afternoon we went back to the doctor to find out what the hold up was with the appointment for the scratch test. We got our appointment time.

Thank you, Canadian Medical System

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  • This whole entry, from beginning to end, just leaves me with my mouth hanging open in shock.

  • I'm sorry?

  • Would you hate me if you knew that I actually laughed out loud at the end?

    Cause I know. Oh how the fuck I know. And I am a little surprised it was that early...

    You know I am here babe.

  • I totally thought of you at the end. I figured you *might* have had to deal with that. ;)

  • I added your blog to bookmarks. And i'll read your articles more often!

  • Hi Jess, what do you mean by benadryl? How could we know our kids are allergic to nuts or foods?

  • My youngest daughter had those exact same spots right before she was diagnosed with an anaphylactic allergy to peanuts, tree-nuts and dairy.

    My suggestion, to determine if they are allergic is to give her benadryl and see if it makes the spots lessen. If it is indeed an allergy it should make them shrink within twenty to thirty minutes.

    What about nuts?

    All of this is very similar to my experiences with my kids with allergies, eczema and asthma. Food elimination worked very well for us.

  • Jess, my daughter's already allergic to dairy and wheat. And we've done the elimination diet within the past seven months. She has no issue with soy or nuts, so far, and the fact that she had the same foods while she was with my friend as at home, and had no spots then but now does...seems to make environment be the culprit. If it's an allergen, at all.

  • They look a little like hives to me. Think it might be something as simple as that?

    Unfortunately hives can be caused by all sorts of things: allergies, cold weather, hot weather, water, wind, hormone imbalances, chafing clothing, and, yes, stress (amongst other things).

    Just another thing for you to look into if you haven't already.

  • Yup. It's on the list.

  • Mwa

    Sounds like a nightmare. I hope you can get that changed.

    My nephew had to wait over six months to see a specialist in the UK about his allergies when he was two months old!

  • Aw. That's terrible.

  • I haven't read all the comments, so I don't know if anyone has suggested this or not -- but those look like bedbug bites to me. Some people have horrific allergic reactions to them. I was lucky enough to stay in a hostel in Italy that was writhing with the things, but the bed I slept in didn't have any (I was the lucky teacher with a pack of unlucky students). Some of the bite reactions were so big that they were starting to merge with each other. I know I'm not a doctor even remotely, but might it be worth checking into this as a cause rather than thinking it's a food allergy?

  • Nope. We've had bedbugs before - and I know exactly what they look like and how they feel. And these are completely not raised, and have no centres. They literally are just like really large birthmarks or something. And they don't itch or cause her any discomfort. AND they disappear within hours.

  • why the hell do they make children wait that long ! its disgusting , i really feel for you both

  • Tiera

    The ER definitely. The appointment is bullshit the allergist is just completely booked because people got the sniffles during the summer, it's just the system. Squeeky wheel gets the grease, the more you complain and get in their face the faster they get you through so they don't have to deal with you anymore. If you take a small child into the ER with rashes like that I would hope they would be worried enough to get her an appointment within a few days.

  • I did end up getting a business card for a dermatologist - but not an actual referral or appointment.

  • Wowzas...I think you need hugs!

  • Try to find a NAET practitioner (there's a web site) It's worth it if you can swing the bill. Also, I noticed dried fruit in that cup in the picture. Did she eat that when you were away? If not, try phasing out sulfites. Sulfer dioxide is used to preserve dried fruit (keeps apricots orange). I'm so sorry you have to wait so long. If it's any consolation,I live in the states and my endocrinologist apptmts had to be scheduled months in advance too.

  • I'll be looking up the site you sent me. In all honesty, I would prefer to be going to a naturopath/holistic physician. It always comes down to the money factor, though. They're very very rarely free-ish, here.

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